The aim of this study was to compare the agreement of dementia diagnoses between the National Patient Register and the Cause of Death Register, with dementia diagnoses from six Swedish population-based studies. Five NEAR population-based studies: SATSA, OCTO-Twin, GENDER, SNAC-K, and KP were used to examine this, as well as the HARMONY study.
More than 50% of dementia cases are missed in national registers
Barely half of the dementia cases were detected by the National Patient Register (NPR) or the Cause of Death Register (CDR). However, when registers indicate that a person is having dementia, there are very few instances in which the same person was classified as not having dementia according to the population-based studies. In conclusion, this study shows that hospital-and death registers can be used to identify dementia cases in the community, but at the cost of missing a large proportion of the cases.
Photo of Debora Rizzuto, first author of the study.
Rizzuto D, Feldman AL, Karlsson IK, Dahl Aslan AK, Gatz M, Pedersen NL. Detection of dementia cases in two Swedish health registers: a validation study. J Alzheimers Dis. 2018;61(4):1301-1310. doi: 10.3233/JAD-170572.
The local databases in NEAR: H-70, SNAC-K, SNAC-N, SNAC-B, SHARE-Sweden, and SWEOLD are collecting data on Covid-19. The Gothenburg H70 Birth Cohort Studies started collecting Covid-19 data via surveys between December 2020 and January 2021, where 1103 participated who were 75-76 years old and born 1944 were included. This was financially supported by FORMAS. The […]
NEAR-based study has created and validated a first-time injurious fall (FIF) screening tool to identify older adults at risk of falling over a 5-year period. Two NEAR population-based studies: the Swedish National Study on Aging and Care in Skåne (SNAC-S) and Blekinge (SNAC-B), n=2766, were used to validate the FIF screening tool. The FIF tool […]
NEAR-based study explored whether the rate of new cases of dementia has changed from 1987-2013 in persons aged 75 years or over. Two NEAR population-based studies: the Kungsholmen Project (KP; n =1473, 1987-1998) and the Swedish National Study on Aging and Care in Kungsholmen (SNAC-K; n= 1,746, 2001-2013) were used to examine this. Decline in […]